It’s Hard To Be That Guy.

I’ve been sick. As many of you know I have Ulcerative Colitis, and it’s been in remission for many years. In February, I started getting a pain in my side that wouldn’t go away, and went to my doctor looking for answers. Instead of seeing my regular doctor I saw one newer to the practice, who although I have a history of UC insisted that wasn’t the problem. Long story short, after ending up in the ER at Midcoast hooked to a morphine IV, having 6 blood tests and a CT scan ( right before I had the radioactive dye shot into my vein the tech said to me, “This might make you feel like you peed your pants, which is totally normal. Oh, also, this kills about 1 in 100,000 people instantly.) That was pretty awesome. Obviously I didn’t die. Guess what, they diagnosed me with UC, which I ALREADY KNEW I HAD. Then the ER doc puts me on a course of extremely rugged antibiotics, even though I protested pretty loudly about it. I had to take Cipro and Flagyl, together. Cipro, in case you didn’t know, is what they give people for Anthrax poisoning. Oh also, side effect of Cipro – it can cause sudden rupturing of tendons and is known as a ‘black box’ prescription. After about 4 days on those, I had crippling anxiety (another known side effect) as well as terrible diarrhea. When I finally called my regular doctor, she was so mad about all that had happened and immediately told me to stop taking the antibiotics and prescribed for me the very low-side effect meds that I’ve taken in the past for this disease. They worked, but this time, I did get a side effect from them, tinnitus, which has not resolved yet. And it’s been 3 months. Why am I telling you all of this? To get to this part; so I can stop this disease and the unending train of drugs and doctors, I am now on a very strict diet.

The Specific Carbohydrate Diet was developed specifically for people with IBD, Chron’s Disease, UC, and interestingly, Autism. On this diet I can eat; meat, eggs, veggies, fruit, nuts, honey, and certain kinds of dairy. That’s it. No grains. No sugar. No additives. I make nearly everything myself. I quit drinking coffee. In fact I don’t have caffeine at all anymore. It’s incredibly challenging, and there are very few doctors that will tell you to go on a diet to fix your gut problems, even though there are thousands of people who have successfully gotten off medication and back to a normal life after eating this way. What’s hard is all the food and diet hate. I can feel people rolling their eyes at me when I explain that I don’t eat all this stuff. They assume I’m ‘Paleo’ and it’s just some part of a dieting fad. It’s not. After being on this diet for 4 weeks, I was able to stop making my medication entirely. It’s been almost 3 months now, and I am 95% symptom free. You have to understand. This is a disease that most doctors will tell you, you will NEVER get over. You will NEVER be symptom free, you will ALWAYS be on drugs for it. Drugs ranging from mild to drugs that they use for chemotherapy.

It’s hard to be that guy. It’s hard to ask every single time when you are getting ready to eat what’s in it. It’s hard to tell your family and friends your limited diet, it makes me feel like an asshole. It really does. No I’m sorry, I can’t have that. Or that. Or that. Does this have grain in it? Nope can’t have that either. Want to meet for a coffee? Nope. I’m sure it will get easier, and I will get a tougher skin. I’m sure my not caring attitude will kick in, why should I care what anyone else thinks about what I’m eating? I shouldn’t, but it’s hard not to. So, what I ask is, next time you hear someone asking what’s in something, or refusing food because it has ingredients they don’t eat, reserve your judgement. You have no idea what their deal is.

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