Recently, I learned that medical errors are the 3rd leading cause of death in the US. Also hospital infection rates are quite high, especially in Maine where I live. In fact, Maine hospitals scored very poorly. I had to take my son to the ER today, because I thought he broke his arm (he didn’t) and I saw some things that made me go, “Hmmm, this seems like a really good way to spread disease”. We have a very small waiting room at the local ER, everyone is basically sitting on top of each other in a tiny room. If anyone coughs, EVERYONE in that space is breathing it in. If you know me, you know I’m a bit of a germaphobe, especially when it comes to the puking and pooping diseases. One, because – gross. Two, because I have colitis and a round of Norovirus could have the added bonus of sending me into a flare-up. The thing I am MOST afraid of is C.Diff, the often fatal, extremely hard to treat, diarrhea that is most often caught by old people in nursing homes but is basically exploding (pun intended) all over the country. Now picture this – I am in the ER standing directly behind the person who is checking-in. That person is an elderly man who is holding up a ziplock bag filled with, what is that? Is it brown water? Ohhh ohohohoh no. That, my friend, is human shit. A bag of his explosive poops. He asks the receptionist where the nearest bathroom is because well, obviously he has a serious problem down below. The receptionist gets the guy to sit back out in the tiny waiting room, with the rest of the people who, presumably don’t have explosive shits. Guess what he takes with him? Correct! His bag of poop! Who is next in line? Oh goody, me. I do not sit down in the recently vacated chair. I am, however forced to use the little digital pen thing that the guy with the explosive shits JUST USED and no one wiped off. Not impressed, hospital. Not impressed. Next they put my kid’s finger in one of those blood pressure or whatever it is thinger without wiping that off either. Am I nuts? This is an Emergency Room, in a hospital. A room where people with really bad nasty contagious things are coming in and out all day. Shouldn’t they have different pens for people or a little plastic disposable sheath or something? Shouldn’t you confiscate the bags of human shit? I don’t know. Maybe I’m too paranoid. I know there are much worse things going on in hospitals in other places, but it seems to me like basic sanitation could be a big step in keeping people from getting horrible shit and/or shits from the hospital.
I’ve never been so scared in my life. I’ve started an MFA program in creative writing, which has been my dream for about 10 years. I couldn’t believe I got in, and now I’m scared to death about what that means. I am occasionally gripped with the same kind of terror I experience at the top of a tall building. The view is beautiful and exciting, but it makes me feel shakey and pukey. Will I have the time to do it justice? Is it a bad idea for my family, with so much time dedicated to school over the next two years? The other students I’ve seen in the handbook are much more experienced than I am, or at least better at writing bios. I don’t know if I can do this, but I have to. For one, I just took out a loan so I can. For two, if I don’t , I’ll never know, and fear of not knowing is worse than the fear of doing.
Here is the Jessie Spano Caffeine Pill Freakout, which is basically how I feel all the time. (Not the drugs part obv)
A few months ago I posted about some health issues that caused me to make a major shift in my diet. If you don’t feel like reading the post, the short version is, due to chronic digestive health issues I started an extremely limited diet. I basically was restricted to meat, veggies, fruits, nuts, yogurt I made myself, and a couple of hard cheeses. No grains at all. None. Don’t even ask , “could you eat?” the answer is no. I stayed hardcore on this diet for 9 months. 9. I lost 30 lbs. and I started to go slowly insane.
If you look up the diet I was on, Specific Carbohydrate Diet, you will read over and over, “Demands extreme, fanatical adherence” . You make ALL food yourself, you do not eat out. You do not eat any – this includes condiments – packaged food. Early on I joined a FB group for people on this diet. It was supposed to be a place to be supportive and share tips, foods etc. Occasionally people would share prepared foods that were ‘legal’ on the diet. I took the time to e-mail Raye’s of Maine Mustard to see if their yellow mustard was compliant. That simply means contains no additives other than what’s on the label etc etc. They very nicely emailed me back and assured me that their foods contain only what is on the label and only pure spices, which have no additives. I shared this with the group and was immediately shot down because 1. The company didn’t supply the answer to me through the mail on their letterhead and 2. Because companies cannot be trusted to change their formula at anytime. I ended up leaving the group.
The level of attention I paid to my food, and then to any possible reactions my body might have from any food at anytime started to lead to what I think is an extremely disordered way of thinking. Was my headache from my toddler screaming in my ear or had I been contaminated by a rogue gluten molecule? I had to stock my pantry with foods I could eat that were pretty expensive and got snappish with my kids when they ate my snacks. I had to plan out every meal, and it was even worse when we wanted to go on any sort of outing. I started adding in illegals pretty early on, and by illegals I just mean foods that may not be OK, for example getting a 5 Guys burger on lettuce.
A culmination of events this past December put me in a deep funk, and I realized that even though this diet had helped me, it was in no way sustainable for me if I wanted to be a happy person. That’s the simplest way to put it. What happened was this, I started a new job, and was invited to a catered Christmas party. After agonizing for days about what to do, I simply said I couldn’t go. I work for a really great place and they would have been more than accommodating, but I just couldn’t do it. I just couldn’t send them an email of diet restrictions that was more strict than the one Gwenyth Paltrow is currently being ripped apart for adhering to. Already invites to go out to eat with friends or to their houses had dried up. I didn’t feel like inviting anyone over because it ended up with me making a million different versions of food, much of what I couldn’t eat. Every single phone call I had in relation to getting together with people included, “So, what can you eat?” and resulted in me bringing my own food. My daughter has a keen interest in cooking and baking, and I wasn’t able to try anything she cooked. My family wants to travel, and I couldn’t see myself taking my yogurt maker with me to California, or reading out a list of what I was allowed to eat and making a huge scene everywhere we went. I had enough, I couldn’t take it anymore and tossed the whole diet out the window.
Will I gain weight? Yup, already have. Will I end up with another Colitis flare up? Who knows. You know what else causes Colitis, besides the classic “no one has any idea”? Stress. And this diet was adding so much stress to my life, I think that it is definitely possible that the pros and cons were about 50/50. If I end up sacrificing my social life, quality time with my family, and travel, paired with an unholy obsession with food as well as analyzing every twinge, pang and sniffle, for healthier guts and prescription medication free life, is that an even trade? I don’t know. I’ve thought about it a lot. Right now, I’m eating what I want. Trying not to go too wild with pasta, and continuing to eat healthy amounts of yogurt and other foods that aid gut health. Will I end up back at the doctors? I don’t know. I might have anyway. Right now, I have decided that it’s a quality of life decision, and mine was suffering just as much with the diet as it was with the drugs.
I do not disparage anyone who undertakes this massive change of life for their health. Many people do it and find great success. They are stronger people than I, and I applaud them. But for me, right now, it’s just not in the cards.
Honestly, I think we need to start each month with resolutions, reevaluating our goals and resetting. Like so many, I do so well for the first few weeks of January. Looking back, because I do love metrics, I’ve noticed I make the most blog posts in January, work out the most, knit more. Some of this MIGHT be due to the fact it’s winter in Maine, but I’m pretty sure that has nothing to do with it. I’m pretty sure that it has more to do with simply being conscious of my goals. So yeah, more keeping to the goals this year. I’m thinking a monthly check-in at least. I will even put it on my calendar. That means it’s for real.
I am having a hard time settling down. I have a pile of unread magazines dating back about 3 months. I have a queue of unwatched TV shows a mile long. I have a yoga mat that I haven’t been on in so long, when I unrolled it yesterday a matchbox car flew out of it. Apparently it’s been repurposed as a garage. I know, poor me. In the bigger scheme of things, not being able to enjoy entertaining and relaxing things is a pretty bourgeois problem.
But stick with me for just a minute. Since November, we bought a new house and moved, found a renter and cleaned out our old house (where we lived for 15 years) I started a new job – AND I finished my last class, a capstone in the Humanities and got my degree. That’s a lot of things for a lady to pile on in one month. Not to mention the holidays, which I hosted here in my new home, yes both Thanksgiving and Christmas,
Anyhow, that’s where I’m at today. I’m healthy and happy and apparently fidgety. Oh, in other news, I noticed on my website metrics that someone found this site by googling ‘gross girls in yoga pants’, so there’s that.
2015 is coming to a close, and despite a few bumps, I must say it has been one of the best years ever. It makes me a bit nervous saying that, since I don’t want to spoil my good luck, but 2014 was one of the worst years ever, so I was grateful for an amazing year. Hoping that 2016 is an average year
We moved into our dream house this fall, a giant old house in the middle of town. She needs a little love, but not too much, and we are looking forward to many happy years here. I got an amazing job, it’s basically perfect for me, and I couldn’t be happier. I finished a children’s book, which was illustrated by a good friend of mine. I will be publishing it myself via CreateSpace later this year.
All good things! I was pretty slack about recording my goals last year, but after going through them this morning, it looks like I came in at about 60%. Not bad! I’ve made a new list, changed some things, rolled other things over into the new year. Yada yada. Here are a couple of links to things I’ve mentioned on the list, including my Goodreads where I’ve started making a list of books I hope to read this year, I’m always looking for suggestions!
I am attempting to put up my goal list in the tab above, hopefully it comes through. Wishing all a Happy New Year! Would love to hear about any goals you may have for the new year.
I’ve been sick. As many of you know I have Ulcerative Colitis, and it’s been in remission for many years. In February, I started getting a pain in my side that wouldn’t go away, and went to my doctor looking for answers. Instead of seeing my regular doctor I saw one newer to the practice, who although I have a history of UC insisted that wasn’t the problem. Long story short, after ending up in the ER at Midcoast hooked to a morphine IV, having 6 blood tests and a CT scan ( right before I had the radioactive dye shot into my vein the tech said to me, “This might make you feel like you peed your pants, which is totally normal. Oh, also, this kills about 1 in 100,000 people instantly.) That was pretty awesome. Obviously I didn’t die. Guess what, they diagnosed me with UC, which I ALREADY KNEW I HAD. Then the ER doc puts me on a course of extremely rugged antibiotics, even though I protested pretty loudly about it. I had to take Cipro and Flagyl, together. Cipro, in case you didn’t know, is what they give people for Anthrax poisoning. Oh also, side effect of Cipro – it can cause sudden rupturing of tendons and is known as a ‘black box’ prescription. After about 4 days on those, I had crippling anxiety (another known side effect) as well as terrible diarrhea. When I finally called my regular doctor, she was so mad about all that had happened and immediately told me to stop taking the antibiotics and prescribed for me the very low-side effect meds that I’ve taken in the past for this disease. They worked, but this time, I did get a side effect from them, tinnitus, which has not resolved yet. And it’s been 3 months. Why am I telling you all of this? To get to this part; so I can stop this disease and the unending train of drugs and doctors, I am now on a very strict diet.
The Specific Carbohydrate Diet was developed specifically for people with IBD, Chron’s Disease, UC, and interestingly, Autism. On this diet I can eat; meat, eggs, veggies, fruit, nuts, honey, and certain kinds of dairy. That’s it. No grains. No sugar. No additives. I make nearly everything myself. I quit drinking coffee. In fact I don’t have caffeine at all anymore. It’s incredibly challenging, and there are very few doctors that will tell you to go on a diet to fix your gut problems, even though there are thousands of people who have successfully gotten off medication and back to a normal life after eating this way. What’s hard is all the food and diet hate. I can feel people rolling their eyes at me when I explain that I don’t eat all this stuff. They assume I’m ‘Paleo’ and it’s just some part of a dieting fad. It’s not. After being on this diet for 4 weeks, I was able to stop making my medication entirely. It’s been almost 3 months now, and I am 95% symptom free. You have to understand. This is a disease that most doctors will tell you, you will NEVER get over. You will NEVER be symptom free, you will ALWAYS be on drugs for it. Drugs ranging from mild to drugs that they use for chemotherapy.
It’s hard to be that guy. It’s hard to ask every single time when you are getting ready to eat what’s in it. It’s hard to tell your family and friends your limited diet, it makes me feel like an asshole. It really does. No I’m sorry, I can’t have that. Or that. Or that. Does this have grain in it? Nope can’t have that either. Want to meet for a coffee? Nope. I’m sure it will get easier, and I will get a tougher skin. I’m sure my not caring attitude will kick in, why should I care what anyone else thinks about what I’m eating? I shouldn’t, but it’s hard not to. So, what I ask is, next time you hear someone asking what’s in something, or refusing food because it has ingredients they don’t eat, reserve your judgement. You have no idea what their deal is.
I knooow that’s what you guys are asking yourselves. Well, those of you that ‘follow’ me social media-wise. I’ve had Instagram for awhile, but I didn’t really start using it until a few weeks ago. Now I’m trying to add one post per day. Is it as simple as me just wanting to participate in something fun? No. Nothing is ever that simple.
I’ve been doing a lot of thinking lately, more than usual even. Trying to get some new perspectives, change old habits, pay attention to how different things make me feel. ln much the same way that I notice eating certain foods make me feel sick, consuming various types of information and media were also starting to make me feel gross. Now, this isn’t going to be one of those long, ranty posts about how much Facebook sucks, but I will say, that I started noticing that it wasn’t making me feel very good. I’m not going to lie. I friggin’ love Facebook. However, I found myself getting super annoyed and cranky with people that honestly, if Facebook wasn’t around, I would have no contact with whatsoever. I found myself getting wrapped up in the enormous long-winded oversharing dramas swirling around. Spending time wondering, “Gee, I wonder how so and so is doing with her whatserwhosit”. Is that necessarily bad? I don’t know. I’m what’s known as a ‘super-empath’, I know it sounds very new-agey, but whatevs. It’s what I am. Basically, I it’s a really nice way of saying I very easily get wrapped up in other people’s shit on an emotional level. So, I started to back way off on Facebook. I deleted it from my phone. I did what dieters do when they try to get ahold of eating habits and check-in with myself when I found myself logging on to the blue beast, asking myself “Why?” Why are you checking in? This is what I discovered, most of the time when I was checking in, which honestly was frighteningly frequent, I was either:
Does FB really help me with any of those things? Sure it kills time, but it’s certainly not helping me achieve any of my goals, and aiding in procrastination isn’t great either. It does help with loneliness, but so does a text of a phone call. Anyhow, I’ve backed way off. Yes, I’m still on FB probably once a day. Sometimes not. I feel a lot better. Does this mean I’ve given up social media? Oh, God no. Which brings me to…
Instagram. (BTW, yes my account auto-posts to my FB and Twitter unless I unselect it. I can’t decide if this is obnoxious or not.) As opposed to FB, Instagram is making me feel pretty good. For one, I’m using it as a tool to find beauty in my everyday life. Well, beauty and humor, but I think those go together. I subscribe to other members that have similar ideas, but also that post amazing photos. So, instead of checking in on political rants or people’s divorces, what I’m seeing are incredible photos of MOMA, sunsets in Hawaii, knitwear, meals people are proud of. It’s a really different vibe, and it makes me feel better about the world around me, and what I’m putting out there. Pretty deep for a photo app, eh? Also, I have GOT to become a better photographer. No, it’s required. I have new clients, and some that are in the wings, and in the world we live in today, if you are a writer, you better be able to take some decent photos. Publishable photos. I’m trying, you guys. I think I’m getting a little better every day.
Twitter, I love you. You’re a different post altogether.
If you want to see my photos, there’s a button over there —> to follow me on Instagram. You know, if you want to, or whatever.